HRS §324-22
Confidentiality and use of tumor registry information
This section says that material collected for the tumor registry can only be used for medical research, education, or reducing illness and death. It keeps patient identities confidential, but allows researchers to contact patients for more information after approvals, and requires patient or family consent before direct contact.
everyone
The statute, as written — Identity of persons studied and material, restrictions
(a) The material collected under this part shall be used or published only for the purpose of advancing medical research, medical education, or education of the public in the interest of reducing morbidity or mortality; provided that the Hawaii Tumor Registry may reveal all relevant information to a patient's attending physician. (b) The identity or any group of facts that tends to lead to the identity of any person whose condition or treatment has been studied shall be confidential and shall not be revealed in any report or any other matter prepared, released, or published. Researchers, however, may use the names of persons when requesting additional information for research studies after being approved by the cancer commission of the Hawaii Medical Association and the appropriate federally authorized human subjects protection board. (c) The use of additional information obtained by researchers shall also be governed by subsection (a) and, in addition, where the patient is still living and the information is to be obtained directly from the patient, the researcher shall first obtain the approval of the patient or the patient's immediate family, including a reciprocal beneficiary, in that order of priority.
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